Your first human rights fact: globally, there is a massive epilepsy treatment gap (number of people who need epilepsy treatment and do not receive it). 90% of people with epilepsy in Africa remain untreated including 78% in Togo, 85% in Kenya, 98% in rural Ethiopia and 100% in rural Tanzania. Treatment gaps in South Asia are similarly dire with 38%-78% gaps in India, 63% in China, 84% in rural Vietnam, 97% in Tibet and 98% in Pakistan. There are also many pockets in Latin America, including rural Ecuador (88%) where I will be working at a community epilepsy organization next semester, that have similar stats. It is time that epilepsy is no longer the globally forgotten disease, guys!
There are many ways you can help in any way that makes sense for you:
- If you want to make a monetary contribution, the International League Against Epilepsy or the World Health Organization's "Out of the Shadows" campaign are great organizations to give to.
- Spread the word that epilepsy is an incredibly important public health issue and is not given the attention it deserves.
- Smart college buddies: get involved with epilepsy advocacy events (I'll keep you updated about some important ones). Also, there are lots of epilepsy-centric careers of the lucrative (epileptologist) and non-lucrative (non-profit/public health/advocacy) variety out there. It's really important that our generation be the ones to change these figures!
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